Neuroblastoma Advocacy Groups & Support
Neuroblastoma Advocacy Groups & Support
The organizations listed below offer valuable information and support for families dealing with a childhood cancer diagnosis. United Therapeutics Corporation is not affiliated with the featured organizations. The information provided by the organizations is meant for informational purposes only.
Arms Wide Open Childhood Cancer Foundation (opens in a new tab)
Funds research on improving quality of life for children with cancer
Band of Parents (opens in a new tab)
Supports neuroblastoma research and offers a network for newly diagnosed families
Beads of Courage (opens in a new tab)
Provides innovative, arts-in-medicine programs for children coping with serious illness
Bear Necessities (opens in a new tab)
Offers emotional, educational, financial, and psychosocial support to families of children with cancer
Candlelighters for Childhood Cancer Family Alliance (opens in a new tab)
Provides emotional, educational, and practical support to families of children with cancer
Children’s Flight of Hope (opens in a new tab)
Provides flights for children needing access to critical medical care
Children’s Neuroblastoma Cancer Foundation (opens in a new tab)
Holds education conference for patients and families, to learn more about neuroblastoma research from doctors and researchers
Coalition Against Childhood Cancer (CAC2) (opens in a new tab)
A collaborative network of nonprofits, corporations and individuals supporting the childhood cancer community. They offer a hub (opens in a new tab) of resources for patients and survivors
End Kids Cancer Foundation (opens in a new tab)
Provides financial support for pediatric cancer research and clinical trials, with a focus on treatment innovation
Mattie Miracle (opens in a new tab)
Promotes psychosocial support for children with cancer and their families, and supports related research efforts
Shir for Life (opens in a new tab)
Supports global neuroblastoma research, raises awareness and promotes collaboration among healthcare providers
Solving Kids Cancer (opens in a new tab)
Identifies and funds research to advance new treatment options for children with cancer
The Evan Foundation (opens in a new tab)
Supports research and offers programs such as the Treats & Treasures Carts select hospitals and clinics across the country
The Still Strong Foundation (opens in a new tab)
Founded by Devon and Leah Still (opens in a new tab), provides financial support to families of children undergoing cancer treatment
Links for community support
Discover more helpful resources below:
- Adjusting to Cancer (opens in a new tab)
- APHON Handbooks for Patients and Families (opens in a new tab)
- Children’s Oncology Group Family Handbook (opens in a new tab)
- Search for neuroblastoma clinical trials (opens in a new tab)
- Support for Families When a Child Has Cancer (opens in a new tab)
- The NANT Foundation (New Approaches to Neuroblastoma Therapy) (opens in a new tab)
- The Psychosocial Standards of Care (opens in a new tab)
Is your child a survivor getting ready for college?
Find college scholarships for survivors:
- Children’s Cancer Cause (CCC) College Scholars Program (opens in a new tab)
- The Evan Lindberg and Erik Ludwinski College Scholarship Program for Childhood Cancer Survivors (opens in a new tab)
- The National Children’s Cancer Society Beyond the Cure Ambassador Scholarship Program (opens in a new tab)
- The National Collegiate Cancer Foundation (opens in a new tab)