Helpful ResourcesHelpful Resources

Downloadable Resources
& Videos

Downloadable resources

Some of these resources can also be ordered at no cost to you by visiting the Request Resources page.

Keep your child’s important medical information on hand for their neuroblastoma care team

Fast Facts for Your Child

Be sure those caring for your child have all of the important medical information that they need in case of an emergency.

Download Fast Facts for Your Child

Frequently asked questions to discuss with your child’s neuroblastoma doctor

Questions to Ask Your Doctor

Prepare for conversations with your healthcare team and ask important questions about your child’s care at each step of the journey.

Download Questions to Ask Your Doctor

Coping with Childhood Cancer Guide

Coping with Childhood Cancer Guide

A step-by-step guide to help set a good foundation for you and your child's mental health throughout your journey. This guide takes you from initial diagnosis to after treatment, with considerations to help you cope with childhood cancer and advocate for resources that may be available to you. Use this guide as you navigate the childhood cancer journey.

Download Coping with Childhood Cancer Guide

The Big Adventures of Little Skivolo

The Big Adventures of Little Skivolo

The Big Adventures of Little Skivolo is a book about what a child can expect when they are diagnosed with neuroblastoma. You can use this book to help explain neuroblastoma to your child, siblings, and community members. Skivolo learns about the different tests he will have in the hospital and the people on the healthcare team who look after him.

Download in English Descargar en Español Télécharger en Français

The Next Big Adventure of Little Skivolo

The Next Big Adventure of Little Skivolo

The Next Big Adventure of Little Skivolo can help your child understand antibody therapy for neuroblastoma. The book follows Skivolo as he begins antibody therapy and learns about what the medicine does inside his body to fight his cancer.

Download in English Descargar en Español Télécharger en Français

Skivolo’s Big Book of Fun

Little Skivolo’s Big Book of Fun

Little Skivolo’s Big Book of Fun is an activity and coloring book for patients and their families. The coloring activities, games, crafts, and puzzles in this book can keep your child and their siblings engaged during hospital visits.

Download in English Télécharger en Français

Zara Takes Off

Zara Takes Off

Zara Takes Off  is a book about the transition a child and family go though once treatment has finished. Zara learns what to expect with follow-up care while she launches into new adventures.

Look for a special foreword from Leah Still, daughter of former NFL player Devon Still. Just like Zara, Leah has finished her neuroblastoma treatment and shares details about her journey.

Download in English Descargar en Español Télécharger en Français

Treatment journey calendar

Treatment journey calendar

This calendar helps families organize dosing schedules, record milestones, and decorate memorable dates with fun stickers.

Request a calendar at no cost to you.

Neuroblastoma Parent Videos

Find hope through one family’s story of resilience in the face of neuroblastoma.

Neuroblastoma Clinician Videos

Learn more from a pediatric oncologist, nurse practitioner and social worker as they discuss points throughout the neuroblastoma journey.

Neuroblastoma parent conference videos

Explore the video link below to watch neuroblastoma experts discuss points in the neuroblastoma journey.

Managing neuroblastoma treatment costs and insurance

The cost of cancer treatment can often be a source of stress for families. It is helpful to meet with the oncology social worker to discuss your concerns. They can help you assess your financial needs, help evaluate your health insurance coverage, and connect you with resources like:

Managing neuroblastoma treatment costs and insuranceManaging neuroblastoma treatment costs and insurance
  • Family and medical leave (also called FMLA)
    • Many working caregivers may need to be away from work for periods of time to take care of their child. Your social worker can help navigate leave
  • Social Security
    • Neuroblastoma treatment can be a long journey. Your social worker can help with the application process to determine if your child is eligible
  • Other financial resources
    • Medical bills can add up quickly. If you do not have health insurance, your social worker may help your child get health insurance benefits. However, health insurance doesn’t always cover all costs. Your social worker can help find other resources, such as co-pay or medication assistance
    • There are local and national organizations that also help with financial concerns, ranging from medical cost assistance, housing assistance, and travel assistance, to general financial help. Your social worker can help connect you

To learn more about organizations that may be able to help with the cost of your child’s treatment, go to the Neuroblastoma Support and Advocacy Groups page.