Helpful ResourcesHelpful Resources

Helpful Resources

Downloadable resources

Keep your child’s important medical information on hand for their neuroblastoma care team

Fast Facts for Your Child

Be sure those caring for your child have all of the important medical information that they need in case of an emergency.

Download Fast Facts for Your Child

Frequently asked questions to discuss with your child’s neuroblastoma doctor

Questions to Ask Your Doctor

Prepare for conversations with your healthcare team and ask important questions about your child’s care at each step of the journey.

Download Questions to Ask Your Doctor

Skivolo resources

The Big Adventures of Little Skivolo

The Big Adventures of Little Skivolo

The Big Adventures of Little Skivolo is a book about what a child can expect when they are diagnosed with neuroblastoma. You can use this book to help explain neuroblastoma to your child, siblings, and community members. Skivolo learns about the different tests he will have in the hospital and the people on the healthcare team who look after him.

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The Big Adventures of Little Skivolo

The Next Big Adventure of Little Skivolo

The Next Big Adventure of Little Skivolo can help your child understand antibody therapy for neuroblastoma. The book follows Skivolo as he begins antibody therapy and learns about what the medicine does inside his body to fight his cancer.

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The Big Adventures of Little Skivolo

Little Skivolo’s Big Book of Fun

Little Skivolo’s Big Book of Fun is an activity and coloring book for patients and their families. The coloring activities, games, crafts, and puzzles in this book can keep your child and their siblings engaged during hospital visits.

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The Big Adventures of Little Skivolo

Meet Zara, one of Skivolo's friends. She has finished her neuroblastoma treatment. With the help of her healthcare team and her friends and family, she learned how to live as a neuroblastoma survivor. Check back soon to learn more about her life after treatment!

Neuroblastoma parent conference videos

Explore the video links below to watch neuroblastoma experts discuss points in the neuroblastoma journey.

Managing neuroblastoma treatment costs and insurance

The cost of cancer treatment can often be a source of stress for families. It is helpful to meet with the oncology social worker to discuss your concerns. They can help you assess your financial needs, help evaluate your health insurance coverage, and connect you with resources like:

Managing neuroblastoma treatment costs and insuranceManaging neuroblastoma treatment costs and insurance
  • Family and medical leave (also called FMLA)
    • Many working caregivers may need to be away from work for periods of time to take care of their child. Your social worker can help navigate leave
  • Social Security
    • Neuroblastoma treatment can be a long journey. Your social worker can help with the application process to determine if your child is eligible
  • Other financial resources
    • Medical bills can add up quickly. If you do not have health insurance, your social worker may help your child get health insurance benefits. However, health insurance doesn’t always cover all costs. Your social worker can help find other resources, such as co-pay or medication assistance
    • There are local and national organizations that also help with financial concerns, ranging from medical cost assistance, housing assistance, and travel assistance, to general financial help. Your social worker can help connect you

To learn more about organizations that may be able to help with the cost of your child’s treatment, go to the Neuroblastoma Support and Advocacy Groups page.